Top Tips

First I want to make clear these are not all mine... many people on EDS forums have written these and allowed me to use them. Thanks guys :-)

1. Bowen Therapy- this is one I use and can swear by it though you need a good Bowen therapist
2. Medications- One thing I have to add here is if you need them TAKE them don't not take them because of what other people may say and think.
3. The ocean
4. Pain Sprays
5. Arnica Cream- LOVE LOVE LOVE IT!!!!
6. Dental Splint for TMJ and migranes
7. Family- This is my life line
8. Music
9. Pilates- Be careful with the way you move your joints in this though
10. Gastrolyte- an oral re hydration solution you buy at pharmacies.
11. Memory Foam Mattress Pillow
12. Sorbolene Moisturiser
13 Kindle- many with EDS cannot hold books open for long
14 Naps- I take many naps a day it is something that gets me through
15 Paw Paw cream- for cracked lips
16. Paper Tape
17. Gauze
18. Bandages- to wrap round dislocated joints
19. Wheelchair- without it I just could not do half of the things I do
20. Hand Splints
21. A brilliant doctor
22. Keeping fit with gentle exercise when possible
23. Speech Therapy
24. Dragon Naturally Speaking- to reduce keyboard and mouse use
25. Customized Ergonomic Desk
26. Beanbag
27. Bookseat or pillows to support books when reading
28. Alternating activities- not doing any one activity for too long
29. Only shopping for short periods of time
30. Hot baths to warm up in winter
31. Heat wheat packs
32. Electric Foot Warmer
33. Keeping Hydrated
34. Wrist BP monitor
35. Patience
36. Good Physios
37.Thumb Splints
38. Pacing yourself
39.  Being Organized
40. DVDS
41. Laptop
42. When travelling don't forget that all your medical equiptment can be separated from you.
43. Always travel with a letter confirming your EDS
44. Companion Card
45. Fold up camp chairs instead of plastic chairs

Hope this helps some people