Marfans, and stuff

Hi All,

I promised I would write an update today. I saw some doctors what I got out of it was:

• My thyroid levels were good YAY!
• I have a mild form of Marfans Syndrome
• I have Chronic Fatigue Syndrome
• I need a proper heart check and I may need heart surgery
• The doctor I have been seeing (endo) couldn't care less so I am going to change doctors! I don't like being brushed off by doctors who don't do their research into EDS

I think that I need some sleep and a bit of time to get myself sorted.

God Bless
EDSgirl