Travelling

Hi All,

Friday night I went on a camp with a group of friends from church. We all had a great time. I thought I should post about what it is like travelling with EDS, even though I always have a great time travelling for me is not easy.
1. I have no muscle mass so when I am sitting I am sitting on bone. So a car ride, especially a bumpy ride is super painful. Often I dislocate when in the car and I wait until we stop until getting it all sorted out.
2. Once in an unfamiliar place, I have more of a worry of falling. I have to consciously think about what I am doing as I may trip and fall which leads to more dislocations, which lead to more pain!!
3. Sleeping on an unusual bed is very hard for me and I wake up more during the night. This bed wasn't bad but I still woke up a lot.
4. Being active leads to more pain and makes the chronic fatigue worse than usual. I went to bed earlier than anyone else, and I also had some naps to help with that.
5. I have to make a packing list before I go so that I don't forget any medical things as if I do I wouldn't have a very good time!
6. I also need to pack a lot more than anyone else because of the medical stuff.
7. I need to drink more because of my POTS as one thing I don't want to do is faint!
Before I go on I want to thank all those that helped me on the camp- they know who they are.
Friday night I popped my knees out. Saturday I popped my thumbs, ankle and neck. The neck was very painful and I had a panadol forte to help with that.

EDSgirl