An average day

Hi All,

I thought it might help if I explain what an average day is like for me

I wake up- between 7 and 11am- it really depends on the sort of night I have had and whether or not I have to go out. I have to put several joints back in where they have come out overnight. Then I get some breakfast (my nausea is worse in the mornings and when I am eating). After breakfast I may or may not bring whatever I ate back up. If I do bring it back up it dislocates my jaw and leaves me with a headache and sore throat for the rest of the day. Then I may lay down for a while. I then will get dressed- I try to find clothes that are loose fitting and easy to get on. I will pop joints out while doing this. I then have to do my hair BIG CHALLENGE- I usually get someone else to do it as it is really painful for me to do it and my shoulders come out. After that it depends on what I do during that day. At lunch and dinner the nausea isn't as bad and I don't usually vomit but I can do. After dinner I usually do what I have to do and tidy up a bit around the place. Then I get into bed, watch some TV, use the laptop and read a bit. The day takes a lot out of me and although I often have naps during the day by night time I am exhausted and in heaps of pain that the pain killers don't do much for. I haven't put evertything here. I have other things I do such as physio, doctors appointments, washing, cleaning etc that causes problems as well. I also wake up 5 or 6 times a night in pain. I can sometimes get only 2 hours of sleep at night and still have to go about my day to day life. It is hard to get through things somedays and the day I am describing is a GOOD day! Somedays the pain is so bad I can't get out of bed and the nausea so bad I can't eat. I hope this gives you an insight into my life.

EDSgirl