Friday, 27 July 2012

Lots Happening

Hi All,

On Wednesday I had 3 doctors appointment. The first was with that wonderful GP who knows about EDS. We were in there for an hour and she made up a care plan asked about how EDS affected me etc. She also said to come to her with any issues physical, or emotional because lets face it. Living with chronic pain is HARD! Even when I pretend I'm fine. Then I had an appointment with second skins to get fitted for new hand splints. I got to the area quicker than expected so I went to the shops for 5 minutes to get something to eat. Well I went in got myself something to eat that was all OK. Then on the escalator a woman she must have been in her 60's ran through and I fell dislocating my collar bone further than usual and my knee- so there I am screaming in pain and she RAN off! Now that is just plain rude. I wouldn't have minded so much if she had have apologized and helped me. She may not have meant to hurt me, but that isn't the point she did and the least she could have done is apologize. There is no way that she didn't know I was hurt. She wasn't to know I have a disability but she could have knocked a small child or an elderly person over just carelessly rushing like that!! Then I still had 2 appointments. I went to second skins and luckily they had a sling as I didn't have one in the car! You would think with someone who dislocates all the time you would have a sling! The appointment went well and they were very very careful not to hurt me more as I was visibly in heaps of pain by the time I got there. Next I had an appointment to get my leg/hip strappings. They fit well and are working well so all happy there. I am also trialing a mattress at the moment- a latex one. To be honest I hate it it is making my pain worse and my sleeping worse than it already is. I have been trialing it since Monday its not working. I am going to trial another one soon so I will keep you all updated as to how they go. Tommorow I am going to meet someone else with EDS so very excited.
Love and Hugs to you all
EDSgirl

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