Awareness, Health and Sadness

Hello to all,

I just wanted to say that I am trying to raise as much awareness as possible for EDS. Please get your friends to like and share my facebook page facebook.com/EDSAWARE
Also can those reading this please have a look!
On my health- my hip is very sore today as I did too much yesterday so today I had a 'crash' day and didn't do very much! I am hoping to see my doctor soon. Also we found a new doctor that knows about EDS which is always a bonus!! It is hard when you have a GP that doesn't understand a lot about your condition especially when it is as dangerous as EDS.
On the illness being dangerous, it really is. Another with EDS died a few days ago who didn't have vascular and had been married just 6 days before. She was on her honeymoon :( When you are at the prime of your life you should have no fear of dying. With this condition it is a blessing just to wake up in the morning, even when you know that you will be in pain all day. Many doctors are misinformed and think that Vascular EDS is the only type that kills. This young lady's death has just brought home how easily my life could be taken away. So I will leave my life in God's hands.

Love to all,
EDSgirl