Hi Guys,
IN ADVANCE: THIS MAY BE A DEPRESSING POST
Today I went to my physio who I will call P for the sake of this post. She said that my muscles are just wasting away so I may have a muscle wasting disorder. And I need to get testing to see what is going on. P is very worried about me and says I am too frail and if they don't figure out what is wrong I will continue to get worse and worse.
Then I went to my Bowen Therapist I will call her B. B said that my scoliosis has got to the point that I need surgery before it gets much worse. I am scared and worried. I know that I need the surgery but I am scared of something wrong happening because no surgery is simple with EDS and this is a BIG surgery.
Oh well I will have to wait and see and talk to some doctors.
If any of you have had this surgery please comment about your experience.
Thanks
EDSgirl
No comments:
Post a Comment