Overdoing it and Adjusting

Hi,

I have found that because I am sick most of the time when I do have a good day I tend to over do it and then I have a string of bad days after that. Yesterday I was feeling heaps better than I have been lately so I did a lot of errands that I wanted to do yesterday morning, then I had a doctors appointment in the afternoon and then I went out with some friends last night. Today I am utterly exhausted and am laying in bed resting up and taking a lot of pain killers. I am glad that I went out yesterday as I had a really good day and had some sense of normality which I am losing lately but I am paying for it today. I have found that I have to way up the odds and prioritize do what is absolutely necessary before doing the things that I have to do. I suppose I need to learn to know my limits so that I do not suffer the next day- but is the price to pay for that giving up a normal life? I don't want to do that but I have to keep my body as strong as possible so I can do what I have to do. I am learning to adjust and mourning for the old me- the life I have lost. I may put up a brave front but I do miss the person I once was even though I was never 'normal'. Last week the doctor told me basically that this is it and I will continue to deteriorate and I need to enjoy my life while I am still well enough to live it to some degree. I am still in shock even though I knew it was coming. So at the moment I am adjusting and getting used to the way that I now have to live my life.
Sorry if this post is a bit depressing
EDSgirl