Hello,
I am AMAZED!! Yesterday I went to get a molescan and I was telling the doctor (who I have never met) that I have Ehlers Danlos and he said "oh yes I know what that is, I just skimmed over it in med school" then he proceeded to tell me a lot about it, why, what it affects. He told me more than my doctor has told me in 6 years in under half an hour. Then when he got to my back and saw my scars that my doctor said were caused by growing. HAHA.
He asked me if I had ever been tested for Addisons disease. No I haven't. He said that I have the signs of it then he touched my bones which made me whimper in bone and said that more than likely the Addison's is eating the bone (in a round about way) So maybe I don't have Chiari YAY! I looked Addisons up and I do have the signs. Hopefully I will find out within the next couple of weeks.
I am feeling mixed emotions about this, but at least it is a step in the right direction. I am thankful to that doctor.
I am having a bad day today in a lot of pain and tired (didn't sleep well last night) and feel as though I am coming down with the flu.
Have a goodnight
EDSgirl
No comments:
Post a Comment